Wednesday, May 07, 2008

The Good kind of cancer?

The Good kind of cancer??

I met with my pancreatic surgeon, Dr. Andrew Lowy today. He says I need the Whipple. You can learn more here:

This operation is going to be very intense. They will remove 1/3 of my pancreas, 10 inches of my small intestine, part of my stomach, part of my bile duct and my gall bladder. They will reattach my intestine to my pancreas and may have to take a vein from my neck to rebuild the portal vein that goes to my liver. It is a five to eight hour surgery that will have me in the hospital for at least two weeks; longer if there are complications from the surgery. Often the pancreas tries to digest all the stitches inside the body and so there is good possibility of fluid leakage and I will have to have a port through my stomach so they can drain all the fluid out. It is very dangerous and intense and this is the GOOD kind of cancer!!!!

I have been offered two dates for surgery, one of them is april 18th. The whipple is the only way to remove this tumor 100%. I have read so much about it and many people have tried to eradicate the NETs (neuroendocrine tumors) thru vitamin C therapies, laetrile therapies and other alternative medicines to no avail. Now that I have had a needle biopsy the tumor may grow more quickly. I read about one woman whose tumor grew twice its size in one month after a needle biopsy!! I am really worried now about my European tours because if I get pancreatitis again then they wont be able to operate on me for weeks. Pancreatitis is caused by stress and poor diet. Lack of sleep adds to stress. Being in a van bouncing around all day adds to stress. Long drives add to stress. Weird food at strange hours leads to stress. Jet lag leads to stress. I am still trying to decide if I am going or not. This news today was most upsetting.

I was supposed to do some workshops with my special needs kids in the Netherlands this week, in anticipation of our scheduled tour on June 21. I think now I will have to cancel the workshops, and tours and have this intense surgery on April 18th so I can get on the road to recovery and maybe resume working in June.

I am very worried about this surgery. Being a fat girl doesn’t help things in the surgical realm. But I have lost 10 lbs so far just from giving up dairy, fried anything, red meat, coffee, sugar, sodas, starches, fats and bread other than Ezekial. I am staying active, riding my bike, still juicing and trying to be as strong as possible for this surgery. I will definitely be skinnier when this is all over and hopefully, cancer free!!

The first benefit for me is planned for April 20th at Perqs in Huntington Beach 117 Main St 92648 (714) 960-9996 from 1:00 pm to 6:00 pm. My friends Desiree Martinez and Carlos Guitarlos have assembled an amazing array of my friends to perform: Janiva Magness, Juke Logan, Cesar Rosas from Los Los Lobos, Phil Alvin, Billy Sheets, Lynwood Slim, Laurie Morvan. Kid Ramos, The Gears, Gil T, Jeff and Kurt Ross, Thomas Yearsley, Greg Boaz, Jungle Juice and The Kooks. If you can attend, please do. I wont be there since I will have just had surgery but I will be there in spirit.

The next one is May 5th at Humphreys in San Diego. Chet Cannon has organized this one and confirmed are Sue Palmer, Billy Watson, Ruby and the Red Hots, Michelle Lundeen, Chris Klich, Robbie Smith, Scottie Blinn, Juke Logan, Joey Harris, Heine and Missy Andersen. If you’d like to play contact chet at

My friend Barbara Hammerman is planning a benefit in the seattle area. If you would like to play, please contact

Rosie Flores is also planning a benefit in Austin with my friends Susan Antone and Margaret Moser. To play the Antones benefit, please contact Rosie at

My heart is so full from all the love and white light you have been sending me. I will be laid up for several months after this surgery and so all of these benefits will help pay for my living expenses and medi-cal co-pays, and help the band survive with no work. I am very pleased that I qualified for co-pay medi-cal, only because I have a child under 21. If I didn’t have a child under 21, I would have to apply for social security. When I spoke to the social worker about it, he said, “Yes, some people just expire while they are waiting for SSI.” !!!! He said people just EXPIRE like a carton of milk or some old lunch meat. It was so sad. It was a harsh realization that poor people’s lives don’t matter in this rich country of ours. Wow. I am lucky to have a kid under 21 but in just two years, it will be over and I will be ineligible. I don’t know how I will have the follow up care and scans I will need! Oh well, one day at a time…..

I am so lucky and blessed in so many ways. I have so many of YOU rallying for me. They found the tumor early. It has not spread anywhere. I have no symptoms. Im fat so I can stand to lose some of the weight thru this surgery. Other than being very scared and sad occasionally, I feel great.

I am still staying optimistic and I have written this little song I sing daily:

Im gonna be just fine.
Im gonna be just fine
Im gonna live till 109
Im gonna be just fine

Im gonna grow real old
Im gonna grow real old
A white haired lady with a lotta soul
Im gonna grow real old

Grandbabies on my knee
Grandbabies on my knee
I love them and they love me
Grandbabies on my knee

Im healing even now
Im healing even now
Show the world exactly how
Im healing even now.

Please keep those healing thoughts a coming….and any donations you can muster at user name,

Wish this were all an april fools joke….



Blogger Jana said...

Candye, we loved you in Whistler many years ago now. My family fondly remembers your show in the village. Heal fast and well dear friend. You are one very special woman!

7:40 PM  

Post a Comment

<< Home